Together We Are Stronger

Rare disease fair

Rare Disease Fairs aim to educate, engage, and inspire our community about the importance of rare disease research.Our goal is for all attendees – including a diverse representation of patient advocates, patient organizations, pharma, biotech, government institutions, researchers, legislators, and payers – to better understand how they can help with ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.

Seattle

est. 2017

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COLORADO

est. 2025

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OKLAHOMA

est. 2025

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Rare Disease Fairs are organized by the NW Rare Disease Coalition, a non-profit group that supports the Pacific Northwest’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage legislators. Through direct advocacy, industry partnership, and policy collaboration we focus on ending the diagnostic odyssey, improving access to care, and accelerating development of new treatments in the region and beyond.

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Colorado

The inaugural Colorado Rare Disease Fair will be held on October 6, 2025 and features action-oriented discussions around the diagnostic odyssey, genetic testing, and gene therapy.

Children's Hospital of Colorado
Conference Center
13123 East 16th Ave
Aurora, CO 80045

8AM - 5:30PM MST

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Agenda

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SPONSOR

Interested in supporting our mission to engage and activate the rare disease community? Let's talk.

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2025 Fair Partners & Sponsors

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Seattle

Our last annual gathering was held on June 12-14, 2025.2026 details coming soon!

previous speakers & attendees

Testimonials

"The Seattle Children's Rare Fair is one of the best events RDII has participated in over the last two years. This Fair is so well planned and includes incredibly powerful speakers that represent every facet of the rare disease community."

Tara Britt
President and Founder, Rare Disease Innovations Institute (RDII)
Associate Chair, NC Rare Disease Advisory Council

"I was blown away by the support of this global community and firmly believe that these rare stories carry the roadmap to legislative support, services and cures as evidenced by the continual momentum of work for early screening and precision medicine researchers in this field."

Karen Ferguson
Founder, Our Stories Rx
CEO, Discus Analytics
Executive Director, Washington Rheumatology Alliance